Alzheimer's Support Network

Frontotemporal Dementia

What is Frontotemporal Dementia (FTD)?  

Frontotemporal dementia (frontotemporal lobar degeneration) is an umbrella term for a diverse group of uncommon disorders that primarily affect the frontal and temporal lobes of the brain — the areas generally associated with personality, behavior and language.

In frontotemporal dementia, portions of these lobes atrophy or shrink. Signs and symptoms vary, depending upon the portion of the brain affected. Some people with frontotemporal dementia undergo dramatic changes in their personality and become socially inappropriate, impulsive or emotionally indifferent, while others lose the ability to use language.

Frontotemporal dementia is often misdiagnosed as a psychiatric problem or as Alzheimer's disease. But frontotemporal dementia tends to occur at a younger age than does Alzheimer's disease, generally between the ages of 40 and 75.    (Mayo Clinic:


Interview with FTD Caregiver: Len Stickler:

Part 1: First Signs

Part 2:  Self Awareness and The Diagnostic Process

Part  3: FTB Behaviors

Part 4:  Effects on Caregiver. Placement and decline. Personality changes.

Part 5:  Fixations. Top 3 things people need to know.  What needs to be changed?

                                                                     If you would like to share your FTD stories, please email: